Contact Us
We're here to help. Choose the best way to reach us based on your inquiry.
General Support
Questions about using RareConnect, disease information, or technical issues.
PAG Registration
Help with Patient Advocacy Group registration, verification, or profile updates.
Privacy & Legal
Questions about privacy, data protection, or legal matters.
Before You Contact Us
You might find your answer faster by checking these resources:
- Frequently Asked Questions - Common questions about RareConnect
- About RareConnect - Learn about our mission and data sources
- For Organizations - Information for Patient Advocacy Groups
Report Incorrect Information
If you notice incorrect or outdated information on a disease page, the fastest way to fix it is to create an account and submit a correction directly. All contributions are reviewed before publication.
Alternatively, email us at corrections@rareconnect.org with the disease name and the correction needed.
Response Times
We aim to respond to all inquiries within 2-3 business days. PAG registration inquiries may take up to 5 business days during the verification process.
Partnership Opportunities
Interested in partnering with RareConnect? We welcome collaborations with:
- Healthcare institutions and research organizations
- Patient advocacy networks and umbrella organizations
- Medical ontology and data providers
- Healthcare technology companies
For partnership inquiries, please contact partnerships@rareconnect.org